Questionnaires

Questionnaires

 

A questionnaire is an instrument designed to assess (some of) the different aspects that define the QoL of (a specific group of) cancer patients.

 

Conditions of use for Academic Users

If your study is purely for academic use, you will be required to have an Academic User Agreement in order to use our measures. An Academic User Agreement is required for each study and requires no fee.

In order to be able to use the QLQ-C30 and modules you need to obtain the permission via our download process below. By completing the process you are authorised to use the questionnaire in the study you mentioned. For each new study, you will have to enter a new download request.

 

Conditions of use for Commercial Users

If your study has commercial sponsorship you will be required to have a Commercial User Agreement in order to use our measures. A Commercial User Agreement is required for each study and a fee is requested dependent on the number of patients in the study.

For further details for commercial use, please contact us.

 

How to know if you are considered as a Commercial User or an Academic User?

If you are unsure of whether you are a commercial user or an academic user , please refer to our Terms and Conditions.

 

How to obtain the permission to use a module which is not yet fully validated?

Please note that questionnaires which do not have the status “validated” require an additional agreement. You can access the specimen of these modules on their dedicated webpage. You will receive it from one of the QOL administrators via e-mail.

If the questionnaire is validated, your request will be treated by the QOL administrator and you will receive links to the requested measures. If your request contains both validated and non-validated (as from Phase III completed) modules, you will receive them all after signing the agreement for the non-validated ones.

Links for download are valid for 7 days. If you do not download the measures by then, you will have to submit a new request.

List of questionnaires

Code Name
QLQ-C30 Quality of Life of Cancer Patients Core validated validated
PR-SURV19 Survivorship Core IV - in development
CR-SURV33 Survivorship Core IV - in development
BR-SURV40 Survivorship Core IV - in development
PAN Update of the EORTC QLQ-PAN26 Module I / II - in development
WISP The WISP project Module III - in development
FinTox Financial Toxicity Module I / II - in development
ICI 2054 Immune Checkpoints Inhibitor Module I / II - in development
1749 Sarcoma Module I / II - in development
RCC Renal Cancer Module I / II - in development
1750 Multiple Myeloma (update of MY20) Module I / II - in development
M20MMM Metastatic malignant melanoma Module I / II - in development
1841 Male Breast Cancer Module I / II - in development
STO Gastric Cancer (update of QLQ-STO22) Module I / II - in development
CL Cutaneous T-cell and B-cell lymphomas Module I / II - in development
CHI Children 8-14 Module I / II - in development
Bladder 1942 Bladder cancer (merge of BLM30 and NMIBC24) Module I / II - in development
AYA Adolescents and Young Adults Core III b - in development In development
QLQ-ANL27 Anal Cancer Module validated
QLQ-BM22 Bone Metastases Module validated validated
QLQ-BN20 Brain Module validated validated
1751 BN20 update Module III - in development In development
QLQ-BR23 Breast Module validated validated
QLQ-BR45 Breast Cancer (update of QLQ-BR23) Module IV - completed In development
QLQ-BRECON23 Breast Reconstruction Module validated validated
QLQ-CAX24 Cancer Cachexia Module IV - completed Phase III completed
QLQ-FA12 Cancer related Fatigue Module validated validated
QLQ-CX24 Cervical Module validated validated
QLQ-CIPN20 Chemotherapy-Induced Peripheral Neuropathy Module III - completed Phase III completed
QLQ-BIL21 Cholangiocarcinoma and Gallbladder Cancer Module validated validated
QLQ-CLL17 Chronic Lymphocytic Leukaemia Module validated Phase III completed
QLQ-CML24 Chronic Myeloid Leukaemia Module IV - in development Phase III completed
QLQ-CR29 Colorectal Module validated validated
QLQ-LMC21 Colorectal Liver Metastases Module validated validated
QLQ-COMU26 Communication Standalone IV - in development Phase III completed
QLQ-ELD14 Elderly Cancer Patients Module validated validated
MBC Metastatic Breast Cancer Module II - in development In development
QLQ-EN24 Endometrial Module validated validated
FERT45 + FERT29 Fertility Module I / II - in development In development
QLQ-IN-PATSAT32 Satisfaction with In-Patient Cancer Care Standalone validated validated
QLQ-STO22 Gastric Module validated validated
QLQ-H&N35 Head & Neck Module validated validated
QLQ-H&N43 Head & Neck Cancer (update of QLQ-H&N35) Module validated validated
QLQ-HCC18 Hepatocellular Carcinoma Module validated validated
HCPS73 Hereditary Cancer Predisposition Syndrome Module III - in development In development
QLQ-HDC29 High-Dose Chemotherapy Module III - completed Phase III completed
QLQ-NHL-HG29 High Grade Non-Hodgkin’s Lymphoma Module IV - completed Phase III completed
QLQ-HL27 Hodgkin’s Lymphoma Module IV - in development Phase III completed
IADL IADL in Brain Tumor Patients Module IV - in development In development
QLQ-INFO25 Information Module validated validated
QLQ-NHL-LG20 Low Grade Non-Hodgkin’s Lymphoma Module IV - completed Phase III completed
QLQ-LC13 Lung Module validated validated
QLQ-LC29 Lung Cancer (update of QLQ-LC13) Module validated Phase III completed
QLQ-MEL38 Melanoma Module III - completed Phase III completed
QLQ-MY20 Multiple Myeloma Module validated validated
QLQ-BLM30 Muscle Invasive Bladder Cancer Module III - completed Phase III completed
QLQ-GINET21 Neuroendocrine Carcinoid Module validated validated
QLQ-NMIBC24 Non-Muscle-Invasive Bladder Cancer Module III - completed Phase III completed
QLQ-OES18 Oesophageal Module validated validated
QLQ-OG25 Oesophago-Gastric Module validated validated
QLQ-OPT30 Ophthalmic Cancer Module III - completed Phase III completed
QLQ-OH15 Oral Health Module validated validated
QLQ-OV28 Ovarian Module validated validated
QLQ-PAN26 Pancreatic Cancer Module III - completed Phase III completed
pNET Pancreatic Neuroendocrine Tumour Module III - completed In development
QLQ-PR25 Prostate Module validated validated
QLQ-C15-PAL Quality of Life in palliative cancer care patients Core validated validated
QLQ-PRT20 Radiation Proctitis Module validated validated
QLQ-PATSAT-C33 Satisfaction with Cancer Care – Core questionnaire Standalone IV - in development Phase III completed
QLQ-OUT-PATSAT7 Satisfaction with Out-Patient Cancer Care Standalone IV - in development Phase III completed
QLQ-SH22 Sexual Health Standalone validated validated
QLQ-SWB32 Spiritual Wellbeing Standalone validated validated
SURV100 Survivorship Core IV - in development
SBQ Symptom-based questionnaire Standalone III - completed In development
QLQ-TC26 Testicular Cancer Module validated validated
QLQ-THY34 Thyroid Cancer Module IV - completed Phase III completed
QLQ-VU34 Vulva Cancer Module IV - in development Phase III completed

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