History Timeline
Over the years, the Quality of Life Group has strived to improve the quality of life of cancer patients, giving them a voice and placing their experience at the forefront, in line with EORTC’s overall mission to improve the standard of cancer treatment for patients, and ultimately to increase people’s survival and quality of life.
You will find below an overview of the main milestones for the Quality of Life Group and Department over the years.
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Quality of Life Group
Creation of the Quality of Life Group (QLG)
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Quality of Life Department
The Quality of Life Department (QLD) was established at the EORTC Headquarters with the financial support of the European Community.
This project started in November 1993 initially for one year and was extended until May 1995.
The objectives of this project were threefold.
Firstly, to evaluate the importance of various factors that improve the QOL of cancer patients.
Secondly, to supervise the evaluation of QOL in selected cancer clinical trials.
Thirdly, to encourage physicians to pay greater attention to quality of life factors in the treatment of cancer by stimulating, enhancing and co-ordinating the evaluation of quality of life in cancer clinical trials.
The success of this two year pilot project led to the formal establishment of the QOL Department, which is now involved in all EORTC QOL activities
Guidelines
First edition of the Guidelines for Developing Questionnaire Modules
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Andrew Bottomley (Head QLD: 1995-2023)
Brussels - Belgium
New Head of the Department
Andrew Bottomley becomes the Head of the Quality of Life Department
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Manuals
First Version of the Translation Manual
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QLG Website
Creation of the first Quality of Life Group’s website
Item Bank
Creation of the Item Bank
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Guidelines
First edition of the Guidelines for assessing Quality of Life in EORTC clinical trials
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Neil Aaronson (Chair QLG: 2005 - 2008)
Amsterdam - Netherlands
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Galina Velikova (Chair QLG: 2008 - 2011)
Leeds - United Kingdom
Manuals
First edition of the Reference Values Manual
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Galina Velikova (Chair QLG: 2008 - 2011)
Leeds - United Kingdom
Conference
1st EORTC Quality of Life, Symptom Research and Patient Reported Outcomes in Cancer Clinical Trials Conference, 27-29 November 2009, Brussels, Belgium
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Mogens Grønvold (Chair QLG: 2011 - 2014)
Copenhagen - Denmark
Conference
2nd EORTC Quality of Life, Symptom Research and Patient Reported Outcomes in Cancer Clinical Trials Conference, 7-9 September 2011, European Parliament, Brussels, Belgium
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Mogens Grønvold (Chair QLG: 2011 - 2014)
Copenhagen - Denmark
Conference
3rd EORTC Quality of Life, Symptom Research and Patient Reported Outcomes in Cancer Clinical Trials Conference, 17-19 October 2012, European Parliament, Brussels, Belgium
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Lonneke van de Poll-Franse (Chair QLG: 2014 - 2017)
Eindhoven - Netherlands
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Fabio Efficace (Chair QLG: 2017 - 2018)
Rome - Italy
Conference
4th EORTC Quality of Life, Symptom Research and Patient Reported Outcomes in Cancer Clinical Trials Conference, 20-21 September 2017, Crowne Plaza, Brussels, Belgium
Item Library
Creation of the new Item Library
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Anne-Sophie Darlington (Chair QLG: 2018 - 2021)
Southampton - United Kingdom
QLG Website
Launch of the new and revamped Quality of Life Group’s website
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Anne-Sophie Darlington (Chair QLG: 2018 - 2021)
Southampton - United Kingdom
5th EORTC Quality of Life in Cancer Clinical Trials Conference, 16-17 September 2019, Crowne Plaza, Brussels, Belgium
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Jaap Reijneveld (Chair QLG: 2021 - Present)
Amsterdam - Netherlands
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Madeline Pe (Head QLD: 2023 - Present)
Brussels - Belgium
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6th EORTC Quality of Life in Cancer Clinical Trials Conference, 12-13 May 2025, Hilton Barcelona, Spain