Satisfaction with Out-Patient Cancer Care

Gender Neutral
Type Standalone
Testing Phase IV - in development
Principal investigator(s)
Anne Brédart
Psycho-Oncology Unit, Institut Curie
Paris, France
, Amélie Anota
University Hospital of Besançon
Besançon, France

Project summary

Patient satisfaction is now recognized as an important indicator of care quality. Measures of patient satisfaction with care can facilitate monitoring initiatives for care improvement over time. The EORTC Quality of Life Group has cross-culturally validated a stand-alone in-patient satisfaction with cancer care questionnaire, the IN-PATSAT32. Advances in cancer care delivery required further development of this questionnaire to assess patients’ perceived quality of the care received in ambulatory cancer care settings as well. Phase I to III of this process have been completed, resulting in the EORTC OUT-PATSAT7 satisfaction with outpatient cancer care module to assess the specific aspects of ambulatory care delivery. This questionnaire is currently undergoing phase IV large-scale cross-cultural psychometric assessment. In the present phase IV large-scale psychometric study, the EORTC OUT-PATSAT7 will be administered to four main groups of patients based on the cancer care settings which they attend, at three subsequent assessment times. We will investigate the cross-cultural applicability and acceptability, scale structure, reliability including test-retest and internal consistency, validity, including construct (known-group comparisons), convergent and divergent validity, responsiveness to change and cross-cultural invariance of psychometric properties. The sample size will be of 500 to ensure balanced patients’ representation across cancer care settings and cultures/geographical areas. Twenty institutions from European as well as Asian and North/South American regions are aiming to participate in the study during around a 25-months data collection period.

Achievements

Phase I to III of the development of a cancer patient satisfaction core questionnaire have been completed.

Phase IV, cross-cultural large-scale field testing psychometric and prospective study is ongoing.

Future plans

Phase IV accrual is planned in September 2019.

For patients

Patient satisfaction is now recognized as an important indicator of care quality. Measures of patient satisfaction with care can facilitate monitoring initiatives for care improvement over time. The EORTC Quality of Life Group has cross-culturally validated a stand-alone in-patient satisfaction with cancer care questionnaire. Advances in cancer care delivery required further development of this questionnaire to assess patients’ perceived quality of the care received in the ambulatory cancer settings as well. The first phases of this process have been completed. The final phase is ongoing. It consists in a large-scale, cross-cultural evaluation of the measurement properties of this outpatient satisfaction with cancer care module. The sample size will be of 500 to ensure balanced patients’ representation across cancer care settings and cultures/geographical areas. Twenty institutions from European as well as Asian and North/South American regions are aiming to participate in the study during around a 25-months data collection period.

Publications

Bredart, A., et al. (2018). “Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7).” European Journal of Cancer Care (English Language Edition) 27(1).

Bredart, A., et al. (2017). “The European organization for research and treatment of cancer – satisfaction with cancer care questionnaire: revision and extended application development.” Psycho-Oncology 26(3): 400-404.