Vulva Cancer
Project summary
The EORTC vulva cancer module is developed as a disease- and treatment specific questionnaire module for vulva cancer patients to supplement the EORTC QLQ-C30. The aim of the study is to test the scale structure, reliability, and validity of the EORTC VU34 in patients diagnosed with vulva cancer at different stages of disease and with different treatment modalities.We aim to develop a questionnaire module that allow broad international cross-cultural and cross-country adaptation which can be used in clinical trials.
Achievements
The three first phases of development and validation is completed. The questionnaire is now undergoing formal field testing with psychometric analyses.
Future plans
The phase 3 paper needs more editing and acceptance.
Still working on recruiting more centers to speed up the recruitment rate.
Fast track update of newly entered data and patient inclusion
For patients
The EORTC vulva cancer module is a specific questionnaire for patients with vulva cancer. We aim to test the validity of the questionnaire for use in patients from different countries, at different disease stages and in patients undergoing different treatments. This will allow us to use the disease-specific questionnaire in the clinic and in future studies.
Translations
C
CroatianCroatian
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DanishDanish
Dutch
Dutch
E
EnglishEnglish
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GermanGerman
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ItalianItalian
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NorwegianNorwegian
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PolishPolish
Portuguese (Brazil)
Portuguese (Brazil)
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SwedishSwedish
Publications
Froeding LP, Greimel E, Lanceley A, Oberguggenberger A, Schmalz C, Radisic VB, Nordin A, Galalaei R, Kuljanic K, Vistad I, Schnack TH, Jensen PT; European Organization of Research Treatment of Cancer Quality of Life Group the Gynecological Cancer group. Assessing Patient-reported Quality of Life Outcomes in Vulva Cancer Patients: A Systematic Literature Review. Int J Gynecol Cancer. 2018 Feb 8. doi: 10.1097/IGC.0000000000001211. [Epub ahead of print]
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