Conditions of use

Who qualifies as an Academic User?

If your study does not have direct or indirect sponsorship or support from pharmaceutical, medical appliance or related, for-profit health care organisations, please fill in the questionnaire request as an academic user. You will have to accept the terms and conditions for academic use, which are also available here.

Who qualifies as a Commercial user?

If your study has commercial sponsorship or is funded by a for-profit organisation collaborating in the study design and/or getting access to the study data, then the use of our questionnaires in your study requires a commercial user agreement.

If you are unsure whether you are a commercial user or an academic user, please contact us.

If you intend to use the questionnaires purely for academic purpose, you still have to get permission for use of our measures.

You can obtain permission for academic use through the website by completing our webform which you can find here. Your request will then be sent to our team for approval. Of course, we try to handle all requests as quickly as possible but please give us some time.

Once your request has been processed, you will receive an e-mail with links to the questionnaires you have requested. Please note you are authorised to use the questionnaires only in the study you mentioned, so for each new study, you will have to enter a new download request.

Please note that some of EORTC measures are not fully validated; please refer to the terms and conditions for the use of Modules under development by clicking here. To access our general Academic User terms and conditions, please click here.

Why do I need to pay a license fee?

The QLQ-C30 and its associated modules are copyrighted instruments, with all rights reserved. Written, prior consent of the EORTC Quality of Life Group is required for their use. In order to use the QLQ-C30 and modules we would ask you to sign a User Agreement, without which we cannot grant permission to use our measures. Such usage means that a compensation fee is payable to EORTC, which serves as a contribution to current research being carried out by EORTC and the QLG.

What will the fee be used for?

The funds that are generated from the fees will be used exclusively to support the ongoing charitable non-profit research of the EORTC Quality of Life Group, including the development and refinement of quality of life measures.

What is included in this fee?

• The QLQ-C30 questionnaire
• Any specific module(s) required in your trial
• The C30 scoring manual and scoring for the requested specific module(s), if any
• All languages that we have available in our library

Translation certificates can be provided on request.

What information do you need to set up a User Agreement for my study?

The following information is required:

• Protocol Number
• Title of your study
• The number of patients
• The name and title of the authorized representative who would sign
• Full company name and address as required on the User Agreement
• Full company address for the Invoice to be sent
• Dept. and/or Contact name for the Invoice
• Email for invoices
• VAT Number (Europe only-VAT charged only in Belgium but it is a legal requirement for this information if applicable)
• EPRO – will the study wish to migrate the questionnaires to an electronic use device? (We ask this so that we can insert the necessary permission clause into the agreement if necessary): Yes/No
• Module(s) required, if any
• Language(s) required
• Purchase Order Number, if required by your company
• Name, address & telephone of person to receive hard copies by DHL for wet ink signature if required (EORTC requires either a wet ink original for filing or signature via DocuSign)

For Commercial User Agreement, please refer to our standard terms and conditions here. For more information about such agreement and to receive a quote, please contact us and share the above required information.