Keratinocyte Carcinoma

Despite skin cancer (keratinocyte cancer, KC) being the most common cancer among adults, there is no health-related quality of life (HRQoL) tool available for patients with KC.

In this phase 1 module study we aim to:

1. To identify domains and issues of importance to patients diagnosed with KC
2. To determine the difference in prioritisation between younger and older patients with KC in QoL issues of concern
3. To determine the need for additional item sets for patients with high risk and advanced KC
4. To determine stakeholders priorities for future core outcome/item sets involving QoL

Healthcare professional survey on QoL issues in patients with skin cancer has been completed and under analysis.

Current status:

Phase 1

literature review conducted and published, subcontracts signed, ethics approval obtained, HCP interviews completed and under analysis, ethics approval for one extra item identified by HCPs, patient interviews in progress – interim analysis will be presented at EORTC QLG meeting in Copenhagen 09.2025

Patient interviews are ongoing, and interim report is planned to be presented at the EORTC QLG meeting in Copenhagen 09.2025

1) Literature review of QoL issues for patients with KC, 2) Measurement strategy for patients with KC, 3) Scientific publication about measurement strategy, 4) Stakeholder engagement with patients and charities in relation to use of item set/questionnaire, 5) Stakeholder consensus around a core outcome set.