Keratinocyte Carcinoma

Despite skin cancer (keratinocyte cancer, KC) being the most common cancer among adults, there is no health-related quality of life (HRQoL) tool available for patients with KC.

In this phase 1 module study we aim to:

1. To identify domains and issues of importance to patients diagnosed with KC
2. To determine the difference in prioritisation between younger and older patients with KC in QoL issues of concern
3. To determine the need for additional item sets for patients with high risk and advanced KC
4. To determine stakeholders priorities for future core outcome/item sets involving QoL

The literature review of health-related quality of life (HRQoL) issues related to skin cancer (keratinocyte cancer, KC) has been completed and published.

The healthcare professional survey has been completed and is currently undergoing analysis.

Patient recruitment has begun.

The patient survey commenced in March 2025 and is currently ongoing.

Despite skin cancer (keratinocyte cancer, KC) being the most common cancer among adults, there is no health-related quality of life (HRQoL) tool available for patients with KC. In this study we will first perform a literature review of HRQoL issues for patients with KC. We will then survey patients to determine if younger and older patients have different HRQoL concerns, and if patients with more advanced disease have additional concerns. We will also ask health care providers if they have additional HRQoL concerns for KC patients.