Investigating and improving the German response scales of the EORTC core questionnaire for assessing the quality of life in cancer patients (EORTC QLQ-C30) – a three-step approach

Principal investigator(s)
Michael Koller
University Hospital Regensburg
Regensburg, Germany
Project coordinator(s)

Project summary

EORTC QLQ-C30 scales are scored on a 4-point response scale, ranging from not at all to very much. Previous studies have shown that the German translation of the response option quite a bit as mäßig violates interval scale assumptions.

An optimized questionnaire version was developed by replacing the response option 3 mäßig through ziemlich, which fixed the interval scale issue. It was shown that the wording of the response scale had subtle but consistent impact on self-reported functioning and symptoms. This effect was pronounced in patients with a higher health burden.

The optimized response option should be used for the EORTC QLQ-C30 as well as for all other German modules.

Achievements

All three steps of the study are completed.

Future plans

The study is now closed.

For patients

EORTC QLQ-C30 scales are scored on a 4-point response scale. It was shown that the wording of the response scale had subtle but consistent impact on reported functioning and symptoms.
An optimized questionnaire version was developed by replacing the response option 3 mäßig through ziemlich. This optimized response scale should be used for all German EORTC modules.

Publications

Koller M, Müller K, Nolte S, Schmidt H, Harvey C, Mölle U, Boehm A, Engeler D, Metzger J, Sztankay M, Holzner B, Groenvold M, Kuliś D, Bottomley A; EORTC Quality of Life Group. Investigating the response scale of the EORTC QLQ-C30 in German cancer patients and a population survey. Health Qual Life Outcomes. 2021 Oct 9;19(1):235. doi: 10.1186/s12955-021-01866-x. PMID: 34625074; PMCID: PMC8501673.

Poster at Deutscher Kongress für Versorgungsforschung 2020 (DKVF).

Virtual poster at International Society for Quality of Life Research 2020 (ISOQOL)

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