Principal investigator(s)
Cinzia Brunelli
Fondazione IRCCS Istituto Nazionale Dei Tumori di Milano
Milano, Italy
Project coordinator(s)
Hugo Vachon
EORTC
Brussels, Belgium

Project summary

The EUonQoL project supports the European Union’s mission on cancer by developing, piloting, validating, and exploiting the European Oncology Quality of Life Toolkit (EUonQoL-Kit).

EUonQoL-Kit is a set of questionnaires for the assessment of the quality of life of cancer patients undergoing active treatment, cancer survivors, and cancer patients receiving palliative care. The main features of this tool include:

  • multi-stakeholder co-design methodology
  • digital administration
  • availability in several European languages

 

The project kicked off in January 2023 and should be finalized in December 2026. During the span of four years, ten work packages (euonqol.eu) are supporting the project in the three main phases.

Phase 1: EUonQoL-Kit co-creation:

  • Reviewing the existing quality of life tools to establish research gaps.
  • Conducting interviews and surveys to identify patients’ preferences.
  • Developing, translating, and culturally adapting the novel tool.

Phase 2: EUonQoL-Kit validation and data analysis:

  • Conducting the psychometric validation of the novel tool.

Phase 3: EUonQoL-Kit dissemination and exploitation:

  • Developing guidelines for implementation and application.
  • Promoting the use.
  • Conducting spontaneous data collection.
  • Establishing a strong network with stakeholders.

 

Achievements

The development of the European Oncology Quality of Life Toolkit (EUonQoL-Kit) is nearly finalized. More on the efforts of the work packages that carried out the development can be found here: EUonQoL: Results.

Future plans

The next step is the psychometric validation of the tool in 25 EU Member States, 6 associated countries, and 1 third country on an overall sample of about 4000 participants.

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