There is growing evidence for the benefit of integrating patient-reported outcome (PRO)- and quality of life measures in clinical practice. However, so far the use of PRO data by health care professionals (HCPs) is mainly limited to study settings. In order to increase the uptake of EORTC HRQOL measures in clinical practice, methodological support and respective educational tools that are easily accessible are needed. Such e-learning material will contribute to training initiatives that promote the EORTC QOL approach to HRQOL measurement.
Aim of the project is therefore, to develop the content of an e-learning course for HCPs on the utilisation of EORTC QOL measures in clinical practice.
Scope of phase I was to compile information regarding possible content and preferred methods for the planned e-learning course. Phase I included 1. a systematic literature overview regarding training programmes and concepts to facilitate assessment of patient-reported-outcomes and quality of life in clinical routine 2. semi-structured interviews with 72 interprofessional and internationasl health care providers and 3. an international online survey with 233 participants from 33 countries.
Phase one content generation completed, report pending
Grant application for design and pilot-testing of e-learning course is planned
Aiming for good cancer therapy, it is very important to consider each patient’s individual perceptions and experiences regarding symptoms and quality of life, to alleviate symptom burden and to improve quality of life with targeted measures. We aim to develop an online course teaching health care professionals how to include this approach in clinical practice, including how to collect this information from patients and how to react accordingly.